🥄 Well at least you don’t have to go to work.
🥄 You aren’t eating.
🥄 But you don’t look sick.
🥄 Oh you’ve been to the doctor, what did the doc say?
🥄 How long until you will be in a Wheelchair?
🥄 How long until you can’t drive?
🥄 You just need to exercise more.
🥄 I know someone with MS, I don’t think they even take medication, they seem fine.
🥄 It could be worse, you could have Cancer.
🥄 Why are you so tired, you haven’t done anything all day?
🥄 The drugs will make you better.
Garth
It’s unfortunate that people think that saying something awkward and possibly flippant is better than saying nothing. Maybe the flip side of this post is ‘what comments/questions are helpful’. What a journey that you are on! I hope your resilience is staying somewhat intact.
MS Magoo
The flip side is already in draft👍🏻 This journey is most certainly helping me grow as a person. A wise woman once told me you can’t control what other people say and do you can only control your reaction.
Jodi
Yep. I always want to ask where they got their medical degree
MS Magoo
Exactly. Unfortunately I think it is why so many people with chronic illnesses isolate themselves.
Shane Mallory
Illnesses that are not obvious or not manifested in some physical form are very difficult to be comprehended by people who have not experienced them first hand. To me, the best thing to do is simply say, I’m here for you.
MS Magoo
YES
Positively Alyssa
Living with a chronic illness isn’t easy and those without an illness do not understand our struggles. No one would ever understand our struggles until either they feel it or have a family member who does, but even then they might no understand.
Thuam Siam Ngaihte
Fortunately it doesn’t matter much whatever they say, it’s me trying to digest it and turning it into positive response someway somehow