G Day

Gilenya. Medication 2.

Nervous AF. It’s a horrible feeling waking up preparing to spend the day in hospital to take the first dose so that the medical team can monitor your heart.

Gilenya is a medication called a sphingosine 1-phosphate receptor modulator, which is thought to act by retaining certain white blood cells (lymphocytes) in the lymph nodes, thereby preventing those cells from crossing the blood-brain barrier into the central nervous system. Preventing the entry of these cells into the CNS reduces inflammatory damage to nerve cells.

Gilenya was approved by the FDA for treatment of RRMS to include clinically isolated syndrome, relapsing-remitting disease, and active secondary progressive disease, in patients 10 years of age and older.

My medical team have assured me there have been no deaths in Australia from taking the drug. Only America & Europe. I think the comment was supposed to make me feel better but when you’ve learnt to google like a doctor and previously fell into the 1% category with the last medication you just pray you’re not the first cab off the rank. Fingers crossed.