One Sunday, I had been awkwardly standing half on the wood heater and half on a ladder attempting to paint the ceiling around the flue.

Monday I woke up and my left side from my waist down was numb. Dead numb. Couldn’t feel a pin running down it.

Or the freezer, or perhaps the cupboard…

Well 2 hours later I was in a whole new world of pain. I sent the Nurse another text message, thankfully she wasn’t enjoying a glass of wine or she probably would have spat it out. Sorry not sorry. I won’t repeat what I wrote. She called me.

“I am confident that the combination of clinical research and practical support delivered by Professor Siddharthan Chandran and his exemplary team will create a definitive step-change for people with MS and associated conditions.”

It’s the small wins…

If you don’t think, then you shouldn’t talk – March Hare, Alice in Wonderland.

I know someone with MS, I expect their journey differs to yours. Tell me about your journey?

Some great work being done in Brisbane by Professor Michael Penders team.

Nervous AF. It’s a horrible feeling waking up preparing to spend the day in hospital to take the first dose so that the medical team can monitor your heart.

About an hour later I felt light headed and nauseous. They started talking about not letting me leave. I stopped telling them how I was feeling but they had already called the Neurologist to come down and see me.

They shared real life examples of others living with MS, some of whom had quite significant disability and how with MS Queensland’s assistance they were able to support them to maintain employment.