“To share your weakness is to make yourself vulnerable; to make yourself vulnerable is to show your strength”
-Criss Jami
Read More…Me. Thirty Six year old. IT Professional. Lover of all things loud and fast. Perfume is my weakness, oh and Batman. Who doesn’t love a Super Hero?
Read More…One Sunday, I had been awkwardly standing half on the wood heater and half on a ladder attempting to paint the ceiling around the flue.
Monday I woke up and my left side from my waist down was numb. Dead numb. Couldn’t feel a pin running down it.
Read More…Or the freezer, or perhaps the cupboard…
Read More…Well 2 hours later I was in a whole new world of pain. I sent the Nurse another text message, thankfully she wasn’t enjoying a glass of wine or she probably would have spat it out. Sorry not sorry. I won’t repeat what I wrote. She called me.
Read More…“I am confident that the combination of clinical research and practical support delivered by Professor Siddharthan Chandran and his exemplary team will create a definitive step-change for people with MS and associated conditions.”
Read More…I got home and just sat in the car thinking how the f#%k am I going to get the groceries out of the car?
Read More…If you don’t think, then you shouldn’t talk – March Hare, Alice in Wonderland.
Read More…I know someone with MS, I expect their journey differs to yours. Tell me about your journey?
Read More…Some great work being done in Brisbane by Professor Michael Penders team.
Read More…I didn’t hesitate in signing up. I have battled smoking for years. I’ve quit smoking probably a 100 times. Some times just days, sometimes weeks or months with the longest run being almost 3 years. I don’t smoke a lot, some days I don’t smoke at all.
Read More…Nervous AF. It’s a horrible feeling waking up preparing to spend the day in hospital to take the first dose so that the medical team can monitor your heart.
Read More…About an hour later I felt light headed and nauseous. They started talking about not letting me leave. I stopped telling them how I was feeling but they had already called the Neurologist to come down and see me.
Read More…They shared real life examples of others living with MS, some of whom had quite significant disability and how with MS Queensland’s assistance they were able to support them to maintain employment.
Read More…The next day someone from the Brain Bank contacted me. I had forgotten to fill in the address fields. Yup my brains f#%ked. Just reinforcing what I already thought. If there’s life after death, I want a new brain, thanks.
Read More…Kids can see you trip, stumble or fall and mine laugh. But everyone has a hard time understanding fatigue, cognitive issues and visions problems.
Read More…Patients with multiple sclerosis and other autoimmune disorders are known to suffer from OCD, anxiety and depression, but the relationship between these conditions is a mystery.
Read More…The theme for World MS Day 2020-2022 revealed!
Read More…